 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Sharon, there is one thing that most of us do and that is get as mean as a mother bear with our caregivers, get out the nasty word repellant and put it on your back so the words slide right offYou knoe he won't mean them and won't remember saying anything or beig mean probably. It's part of this disease.He will need you more after treatments then before.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| 
