Just to add, it took me a month to get a reply from MSKCC. I needed to send them Everything from 2009-2012...such as scans, cd's, original pathology slides, pathology reports, surgery reports, colored radiation treatment plans, totaling over 400 pages, 26 discs, and so on before a consultation date would even be considered. During that waiting time, phone tag, sending more and more materials each call, I went elsewhere to another CCC for a consultation where my surgery, and treatment was planned! Eventually, after calling several more times, MSKCC told me not to come in for a consultation after all, which was ok with me since I felt I found a better place, and doctors, to treat me, and had a definite plan in place.

Each person's experience may be different than mine.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs