Hey everyone,
On Wednesday we went back to karmanos cancer center for a follow up which was Dr. Jacobs (2nd opinion). The tumor board walked In and said...

You had a relatively thick cancer the cancer has some signs of aggression in large number of patients not particularly you as an individual and it's going to the lymphatics it's crawling around the nerves and it's into the vessels. Recommendation group for re operation on the tongue ..Remove from forearm and neck dissection. After that operation we will know better about your cancer and you may need to do additional therapy which is radiation therapy or chemo radiaton.

The radiaton doctor was basically saying he wants to save the radiation because if it was to ever reoccur they want to keep it in their back pocket. If you don't want the surgery we recommend radiation and chemo to sterilize the area and also this would help to kill any spots that have potential to form cancer in the future but that's not guaranteed.

If the radiaton chemo does not work. When you operate then is the operation the same the answer is probably but I don't know for sure. The complication rate is going to sky rocket because of the prior radiatikn and chemo. There is going to be some problem with speech if I have to operate after chemo radiaton and it's not a free shot.

Your very young to be here so we want to keep many options open as possible.


22 YO Brother Dx 6/17/14 w. SCC R Lateral tongue
CT scan clear LN 6/20/14
HPV-, non-smoker
R tongue, right hemiglossectomy Surgery 6/24/14
(Not reoccurrence but went to NCCC instead
R neck dissection, tracheostomy, radial free flap, R tongue dissection surg 8/11/14
PT1N2B.3 positive lymph nodes out of 13
Extranodal extension present
9-15-14 IMRT (35x) & Cisplatin (2x) begun
10-21-14 peg in. 10-31-14 1 round of carboplatin
11-4-14 IMRT rx comp
3-27-15 Recurrent tumor in lymph node, L neck diss.
10-29-15 brother passed away, 23 yrs old