 Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Hi Gloria. Just finding your post this morning. I'm just so sorry to read the current update with John. As a caregiver it is our worst fear and just leaves us with such a helpless feeling. I 2nd the suggestion of seeking a 2nd opinion and clinical trials. Continued prayers to both you and John as you travel this road together. Hugs, Wanda
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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