That was how they judged Kevin's too. He had many lymph nodes that were swollen. Only 1 was tested, the assumption being more were involved. A week after the first chemo round with all 3 chemo meds the MO felt his neck and was amazed at how much the nodes had gone down. By the time they did the second round of same meds the nodes could not be felt anymore, anywhere. That was what encouraged us.
Nocam...I'm sorry you have not had a more positive experience. Not that there's much to be positive about, but the hope is that the docs would make it as clear as possible. Ours were amazing. We were told what was happening every step of the way. Of course doing the IMRT there was really no way of knowing how it was working, that is true. It is normal to wait until months later. Did they do chemo on you first, or with the IMRT?
Kathy