I had a PEG tube for 3 � years. For many months at a time I was totally dependent on the feeding tube. It is a tough situation to be in, both physically and emotionally. There were many times my medical team and I thought I might require the feeding tube permanently. The PEG is a useful tool that can prevent malnutrition, dehydration and consequently ending up in hospital. The times I could swallow throughout treatments, I could not drink those canned products. The smell makes me puke. IMO permanent PEG uses deserve a medal!

Ensure is the supplement of choice through the Victorian hospital system. A couple of years back I asked if they could supply, or put me in contact with a supplier of the Carnation product mentioned here. The nutritionist looked into it through the hospital contacts. Unfortunately at the time it was too expensive to get in Australia. It might be more accessible now.

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery