 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I really don't know why more people aren't offered the nasal tube as a short term solution. Certainly it can't be used by all of us but the ones that can use it should be given that option. I only had to have it in for 2 weeks but I easily could have tolerated it for a month or so. I was still able to shower and swallow and I really didn't go out in public so having it sticking out of my nose didn't bother me at all considering how much it helped my stubborn butt. I have zero post Tx swallowing issues and I know that is partly due to my lack of radiation damage to that area but one could avoid all of the problems I keep reading about associated with the PEG. Again it won't be suitable for everyone but for those like me it could really make a difference.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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