 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | The hearing experience that he is encountering is most likely damage from the Cis. Please inform his MO asap. Perhaps he may be switched to Carboplatin. Depends on the MO. Some I've talked to think Carbo is just as good as Cis and some don't. To my knowledge there is NO research out that that confirms Carbo is equal to Cis in it's effect on this cancer but many here have been switched and I my MO at Moffitt told me that he would switch me but I was not timely on recognizing my damage sound. The problem with this cancer, whether HPV+ or not, is that it just doesn't always act the same with everyone and the penalty for "guessing" wrong can be the ultimate price so it's easy to throw out recommendations, even extremely educated ones, but we are not the ones that will have to deal with any consequences.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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