That is a great idea Leslie! Emily I am hoping you can answer some questions for me, as a caregiver and family member. I find that I don't talk to my loved ones openly about how I feel and my fears of re-occurance and death etc. Am I protecting them from hurt or should I be more open and worry less about scaring them and making them worry more. Most of them have not done any research that I know of. I don't know if they want to talk about all this or not.


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear