 "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Laurie,
I'm afraid the loss of taste continues not only from now until the end of treatment but for many patients, years and years beyond. I'm almost 2-years out, and many foods have no flavor or will have flavor for a couple of bites and then nothing.
As far as finding things that taste good, for me that changed almost daily. I did enjoy smoothies made with vanilla soy milk (I'm lactose intolerant, so no dairy) and bananas until I couldn't swallow anymore, but everyone here seems to report different results.
And yea, it sucks.
- Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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