Hi,
I'm new to this support group but not new to HPV Negative Oral Tongue Cancer. I was 36 when I was first diagnosed April 20, 2018. I'm a non-drinker, non-smoker, Organic eating, Ultra runner. I live a beautiful life with my husband and 2 great girls 12 & 14.

I've been SO FRUSTRATED on this cancer journey where no one has taken me seriously. Doctors and dentists said I had burning mouth syndrome. After I lost my hearing I was finally sent to an ENT.

Anyways finally a biopsy revealed Invasive SCC, tongue and floor of mouth, 2nd reoccurrence July 2018. Celebrated 2 years Cancer Free this summer only to have it coming back for Round 3.

I'm being sent on to MD Anderson. I guess I'm on here seeking Hope. My end goal is to get my girls raised to graduate High School. Are there any younger 3+ Reoccurrence long term survivors willing to share their experiences? Advice? Thoughts? Inspiration?
Thanks in Advance,
Sarah Haller

You're in the right hands now so 3rd time will hopefully be a charm.

My first surgery was 2003 and last 2015. I've seen my grandkids graduate from high school, the oldest one college and hopefully you'll be able to do the same.