#35702 12-19-2007 09:20 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Well that OC is back in my throat. I just talked to Dr Ozers office and he wants to see me the day after Christmas.. NOt much else to sy right now, I'm feeling kind of down. Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35703 12-19-2007 10:13 AM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Sorry to hear that, Jim. Is it limited to the tongue?
Bear in mind that you are in the best possible hands. You will be at the top of my prayer list.
Try your best to put down the smokes this time --it is tough, but very doable with new medications and such. I quit last February when I had the neck fusion, during which the anesthesiologist noticed "something" at the base of my tongue. The rest is history, but I do not regret quitting for one second. Anything that will help keep this darn thing at bay, I will do. Take the same approach, and you will be amazed at how easy quitting can be.
We are all hear for you, Jim.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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#35704 12-19-2007 10:19 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | So sorry Jim--so soon as well.
At least, as Jeff says, you're in the best hands and hopefully you'll have a Plan in just one week.
I know it's hard to take it one day at a time, but that's all you can do right now.
Know we're thinking of you
Brenda x
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35705 12-19-2007 10:33 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Jim, I am very sorry to read your news. It is so tough for you to be coping with the prospect of another round of treatment. Brenda's advice of living one day at a time is sound. I would schedule an activity or project of some kind for every day until you see your doctor. This may give you a focus apart from your cancer. Thinking of you, lots of love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#35706 12-19-2007 11:53 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Jim, I'm so sorry you got that news. I hope you will have some family around you for Christams that will help you get your mind off it until you see the doctor.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#35707 12-19-2007 12:40 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thank you all for your concern and prayers.. and Jeff, this time it's in my throat. Dr Ozer is going to scope my throat and take biopies to see where m all it is. He'll give me his plan of treatment when I come out of that nice little sleep. Thanks again all. I try very day to keep busy. I will keep you all informed as to what transpires. this sure makes one appreciate everyday life.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35708 12-19-2007 02:21 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Barb stopped by this afternoon. She said she would go with me to Columbus the 26th. THat made me feel better knowing she would be there for me. She is the main person I would want there. Not my kids but her. Now if I can convince her to marry me, it would make this OC much easier to put up with.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35709 12-19-2007 02:25 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Jeff, Dr Ozer will give me his plan right after he finishes and I come around. I have a lot of faith in him and am sure, like you are, that he will do whatever is necessay to cure me.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35710 12-19-2007 03:49 PM | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2007 Posts: 163 | Jim..nothing else to say but... that sucks!
Wish it wasn`t so and sending lots of positive vibes your way.
Take Care
Marica
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
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#35711 12-19-2007 04:03 PM | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Jim,
So sorry to see this.
Please know you are in my prayers.
Hugs,
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
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#35712 12-19-2007 04:29 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Oh, Jim....you know, my Grandma always said 'something good ALWAYS comes from something bad', and Grandma was ALWAYS right about everything...
I don't KNOW WHEN good will happen, but I KNOW that it WILL...
Know that we love you and care about you; praying for the strength you'll need to fight this...We're right here, friend...
Lois & Buzz
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#35713 12-19-2007 07:09 PM | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | We all here will be with you through every "event" as well. Glad to hear that you will not be going there alone - hang on tight - get ready for the next round of demon (cancer) butt kicking!!!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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#35714 12-20-2007 02:07 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I hate to say this but BarbT was right about my offspring. It seems they all want to be near me for now as they did thru the 1st round. My youngest son wants to bring his 2 young ones and spend the weekend with me. LOL I know they have their own lives, families and problems like we all do. He wants to take me out for dinner and won't listen to me about wasting his money on food for me. Just can't eat enough to verify spending his money on food for me. Funny how time can be found when someone has a problem. Good luck all and have a great day.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35715 12-20-2007 03:39 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Jim - I'm so glad you'll have family with you this weekend. You know, going out to dinner isn't just about the food - it's being with people you care about and enjoying their company. And children, especially, are a great distraction when you have other things troubling your mind. Seeing the world through a child's eyes can make you forget your cares for a little while. Children can be very entertaining, too! (You can always get a "take-home" box and pretend you are going to eat it later.) Have a good weekend and enjoy the special moments!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#35716 12-20-2007 04:57 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hi Jim,
Praying for you my friend. You've been on the prayer tree, as is everyone here who I've come to care about.
As for your kids...
I don't know how to explain that one. I see it with my sister and very much with with Eddie's family. Maybe they can't handle it? Fear sometimes leads to poor choices. Give yourself a gift-don't question anything, just embrace them and the time you will share together. They love you I'm sure, and let them know how much you love and enjoy all of them. As Anne-Marie said, it's not about the food...and your son knows that. He probably just needs a 'normal' environment. Do it his way, let him feel a little in control, it may help him. As for you, just be there and let the fun happen.
Lots of love and prayers to you,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#35717 12-20-2007 07:48 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Jim,
My trick for a meal out is to order soup, then ice-cream or similar--forget the entree!
Or I ask for a 'Junior' meal--never been refused yet!
Had some great meals out with my daughter that way last month, she understood and I didn't feel guilty!
And yes, did do the 'can you box that please?' bit as well!
My son hasn't even come, sometimes, when I've been really down,--in fact I last saw him for half a day, beginning of September!-- but am coming to terms with that now--he's coming for New Year and I shall just enjoy whatever time I get to spend with him. I think he's frightened and also blames me for 'bringing this on myself'--who knows what they think???
Take whatever comes your way to build memories--but also remember that friends are an excellent source of support--both real and cyber--I know I'd be lost without mine!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35718 12-20-2007 08:32 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I do have a close relationship with my kids VIA telephone mostly and my grandkids love their Pappy as well. Thay would come and stay every weekend if they could. Not that I spoil them or anything.LOL I usually ored the senior or kids meal when we got out ot eat. and I do get the lil ole box for left overs. Brenfrans idea about ordering soup sounds good and I will do that, but gotta have crackers. My weight seems to be dropping pretty fast lately. Seems I have that dunlap dosease.. LOL My belly has done lapped my belt. Thanks for caring all and I will be sure to post when I get home from Columbus next Wed.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35719 12-20-2007 11:26 AM | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Jim,
The grandkids will help take your mind off of things. My dad and I have had many good chuckles over the last few days talking about things my grandson does. He's only 3 and when he's around we forget about the cancer, even if only for a few hours.
Enjoy your weekend!
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
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#35720 12-20-2007 02:44 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | When I had surgery in Aug. 3 of my youngest grandkids wrote me letters. I just found them and read the. Who would ever thing kids ages 6 thru 9 can express their feelings so well it would put tears in your eyes. I hate for them to go thru this again but have no choice. The 9 yr old boy said he was afraid the whole time I was in surgery and cried. letters like that tear me up inside.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35721 12-21-2007 12:54 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have an idea I will be alone for Christmas. I hope not. Barb is going with me to columbus the 26th , but acts as if I never existed right now. The drive to see my kids and grandkids is just too much to do the day before driving to Columbus. Maybe I should find some old HOBO and bring him home to have someone to talk to and be with. LOL I have never been alone for any holiday and never even gave it a thought. I don't know anyone in this town at all, except for barb and her family, so I am at a loss as what to do. How can anyone be so cruel? I had 7 siblings so you know I am used to people. LOL Sorry for using those shoulders again, but I feel lost.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35722 12-21-2007 02:09 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Jim: Find out if there is a Senior Citizens Center or any type of Community Center in or near Barnesville.
We live in a small town in Central N. C. Every Christmas Day, the community comes together to have a noon-day meal, and EVERYONE is invited. Local businesses donate items for door prizes, music is provided (my sister is one of the entertainers every year)...The goal is to ensure that NO ONE is alone on Christmas Day.
My point is, DO NOT accept being alone. I'm sure there is a Soup Kitchen or Homeless Shelter or SOMEWHERE that you could possibly volunteer for a couple of hours on Christmas Day, if you're up to it physically.
Check your local newspaper, or look at flyers in business windows....Ask at church on Sunday!
Don't make me have to fuss at you! lol
Keeping you in our thoughts and prayers...
Lois & Buzz
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#35723 12-21-2007 04:17 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL go ahead and fuss Lois. I can take it. e have a seniors center, that is fairly new. I'll take my chances being at home. I know I will get a lot of telephone calls that day to keep me busy. This old guy will make it thru the day LOL I hope. Take good care of Buzz and give him a big ole hug. I'll play with the flys. Ph yea.LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35724 12-21-2007 06:02 PM | Joined: Dec 2007 Posts: 46 "OCF Down Under" Contributing Member (25+ posts) | | "OCF Down Under" Contributing Member (25+ posts)
Joined: Dec 2007 Posts: 46 | Hi Jim, Remember, "a log that burns alone quickly goes out, but one that is part of a nice big fire that burns with a pile of others makes for a great quality fire, keeping people warm and fed!" -I'm pretty sure its a quote from the bible but not in those words exactly, but im sure you get my drift! Together, we are like a BIG WARM FIRE for you...you arent alone. I am only ONE of MANY here thinking of you, sending you positive vibes, blessings and prayers and only good can come from that...nothing bad! You will be first off the rank tonight at my own Prayer time!
Love from Lyn XX
Tongue Cancer SCC Removal of 2/3 of right side tongue, neck disection-34 lymph nodes removed. flap for new tongue made from left wrist in 2007. Now (mid 2011) speech has been back to normal since early 2009, and Im back working as a singer. So far so good!
2016... Still cancer free! Yay.
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#35725 12-23-2007 08:34 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | This was a great weekend. I met my son and one of his childhood friends, the his little bot and girl. We had a good time. My son's friend joe, is a Dr just finishing his intern & residency training. I had the 2 kids Sat nite and I took them to church with me this morning. Both of them said this is the best place to stay because we have fun with you pappy. Grandmas no fun.. LOL I loved that. Just wanted you all to know how nice it was for me. If I'm alone Christmas , I'll remeber the last day and smile..day,
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35726 12-23-2007 12:35 PM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Glad it was good Jim! Hang on to those memories.
Christmas Day, I shall have my trusty lap-top by me, as always, whilst watching TV just warm and comfy and mindless!
Type if you want!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35727 12-23-2007 02:55 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Jim,
Kids are the best!!
I'm an old kid at heart-I think you're fun too!
Bren--
If I get a chance, I'll be on to say hello. I'm alone cooking and cleaning....Cinderella as usual....how old do you have to be before you earn your tiara??
Love you all!
D.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#35728 12-23-2007 02:55 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Jim,
Kids are the best!!
I'm an old kid at heart-I think you're fun too!
Bren--
If I get a chance, I'll be on to say hello. I'm alone cooking and cleaning....Cinderella as usual....how old do you have to be before you earn your tiara??
Love you all!
D.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#35729 12-23-2007 03:20 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Jim
I am thinking of you at this time !!! And know that maybe physically you are alone in your home ..but you are never truley ALONE !!! You have US !!! If you were here I would say you could spend xmas with us ,,, I have 5 kids ,,there would be NO LONLINESS AND SURE AS H*&%$ NO PEACE !! LOL, You can come anytime !!!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35730 12-23-2007 04:11 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Sharlee, I come from a large family so I would fit roght in as long as they let me play with the marbles too. LOL There were 8 of u,, 6 boys and 2 girls. Neighbors had 18 believe it or not. Have a Great Christmas and I will try to also. Thanks for the invite.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35731 12-23-2007 04:12 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Good question Donna LOL when I find out the age for that tiara, you will be the 1st i tell LOL I'll look fo you one here.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35732 12-25-2007 02:37 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I woke up this morning hurting more than I did when I had a tongue infection before the 1st surgery. Couldn't even swallow my meds. And to top that off, I must have accidently reset the timer on my coffee pot. LOL Had cold coffee to go with the pain. Good old Micro was there to save me. LOL Have great day all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35733 12-25-2007 06:04 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | It's noon and no let up of the pain. I have take A hydrocodone liquid, a percoset and a xanax. THis pain is laughing at those things. Barb is coming over, that will help a lot. She called this morning and was burning french toast LOL. I like my food well done and told her to bring it with her. Maybe charcoal would help relieve this pain or numb my throat to match my mind. I hope you all had the best Christmas ever.. I still haven't tried that oxycontin.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35734 12-25-2007 09:04 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Jim,
Just take all the meds you need!
I decided yesterday that if I needed them, that's what I would do and have done so!
Okay, so I'm a bit dopey--tho as Ray, my partner says, no dopier than normal!!
Am sitting now sucking on some chocolate!
Hope you and Barb have a good day!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35735 12-25-2007 09:39 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Jim,
Hope the pain meds have 'kicked in' and you and Barb can enjoy the day. Have a very Merry Christmas!!!
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#35736 12-26-2007 01:26 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | The day was very good and I enjoyed what time I had with Barb. LOL We just going to take her daughter and drop her off at her grandmas. Well, after Barb got finished with our short ride, we must have covered 100 Miles or so so she could take us To Dennys to eat. We had a fun day and hope you all did too. Most placces were closed and we ate at Dennys last year and shw wanted to do the same this year.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35737 12-26-2007 01:33 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I wsih someone would tell her how the side affects of cancer can affect a persons mental state. She just doesn't believe me what it can do.. It happens and to all of us who went thru this stuff, know we did it and are sorry. I Need someone that experienced this garbage to send her a letter explaining the mental part of OC.. He address is the same as mine for now. I would appreciate and need any help I can get before it's too late for us to ever be one as before.. Thank you
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35738 12-26-2007 04:55 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Jim
I can send a letter and tell her of my experience. My Dr says with any kind of cancer we also get " Mental cancer " ....That it takes over our minds and emotions as well..some more then others.
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35739 12-26-2007 05:00 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Please do shar. I just can't seem to do it right. And a great Big Thank you .
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35740 12-26-2007 05:54 PM | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Jim, I remember Barb's first and last post. I remember her concern for you in the beginning. And, I seem to remember her frustration towards you posting about your breakup story on line and for some of us rooting for a happy ending. (I think I was one of those guilty parties rooting for the fairybook ending  ) I think she was sending a message to tread lightly. If I was in her shoes, I would not want my first and last name along with my home address published with a plea for letters supporting my (current or ex) significant-other's point of view. Be careful, Jim. Maybe one thing to consider is the emotional toll that cancer has on the caregiver. She's been there and continues to be there for you when you need her the most. I think someone suggested babysteps after all you have tried. That might be a good suggestion. Another idea might be to remove her name and address from your posting. If my husband and I were not in a good place and he did something like that, I'd be hopping mad. Just my humble opinion. Wishing you well.
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Barb read that email . She liked it and got kind of teary like I did. All I can say is thank you to who sent it. You explained it much better than I could. She understood you.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Margaret, I thank you for thinking about those problems, but Barb did enjoy the letter she received and didn't even get a little upset except for tears by the description on what someone else was going thru and had the same feelings and emotions as I did. I guess she needed to hear it in a woman's words. Seems you ladys do a better job than we guys do.. LOL Thank god for that. Have a great day.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Glad to hear some good news for you. 
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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