#35702 12-19-2007 09:20 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Well that OC is back in my throat. I just talked to Dr Ozers office and he wants to see me the day after Christmas.. NOt much else to sy right now, I'm feeling kind of down. Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35703 12-19-2007 10:13 AM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Sorry to hear that, Jim. Is it limited to the tongue?
Bear in mind that you are in the best possible hands. You will be at the top of my prayer list.
Try your best to put down the smokes this time --it is tough, but very doable with new medications and such. I quit last February when I had the neck fusion, during which the anesthesiologist noticed "something" at the base of my tongue. The rest is history, but I do not regret quitting for one second. Anything that will help keep this darn thing at bay, I will do. Take the same approach, and you will be amazed at how easy quitting can be.
We are all hear for you, Jim.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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#35704 12-19-2007 10:19 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | So sorry Jim--so soon as well.
At least, as Jeff says, you're in the best hands and hopefully you'll have a Plan in just one week.
I know it's hard to take it one day at a time, but that's all you can do right now.
Know we're thinking of you
Brenda x
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35705 12-19-2007 10:33 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Jim, I am very sorry to read your news. It is so tough for you to be coping with the prospect of another round of treatment. Brenda's advice of living one day at a time is sound. I would schedule an activity or project of some kind for every day until you see your doctor. This may give you a focus apart from your cancer. Thinking of you, lots of love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#35706 12-19-2007 11:53 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Jim, I'm so sorry you got that news. I hope you will have some family around you for Christams that will help you get your mind off it until you see the doctor.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#35707 12-19-2007 12:40 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thank you all for your concern and prayers.. and Jeff, this time it's in my throat. Dr Ozer is going to scope my throat and take biopies to see where m all it is. He'll give me his plan of treatment when I come out of that nice little sleep. Thanks again all. I try very day to keep busy. I will keep you all informed as to what transpires. this sure makes one appreciate everyday life.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35708 12-19-2007 02:21 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Barb stopped by this afternoon. She said she would go with me to Columbus the 26th. THat made me feel better knowing she would be there for me. She is the main person I would want there. Not my kids but her. Now if I can convince her to marry me, it would make this OC much easier to put up with.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35709 12-19-2007 02:25 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Jeff, Dr Ozer will give me his plan right after he finishes and I come around. I have a lot of faith in him and am sure, like you are, that he will do whatever is necessay to cure me.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35710 12-19-2007 03:49 PM | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2007 Posts: 163 | Jim..nothing else to say but... that sucks!
Wish it wasn`t so and sending lots of positive vibes your way.
Take Care
Marica
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
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#35711 12-19-2007 04:03 PM | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Jim,
So sorry to see this.
Please know you are in my prayers.
Hugs,
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
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