#35732 12-25-2007 02:37 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I woke up this morning hurting more than I did when I had a tongue infection before the 1st surgery. Couldn't even swallow my meds. And to top that off, I must have accidently reset the timer on my coffee pot. LOL Had cold coffee to go with the pain. Good old Micro was there to save me. LOL Have great day all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35733 12-25-2007 06:04 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | It's noon and no let up of the pain. I have take A hydrocodone liquid, a percoset and a xanax. THis pain is laughing at those things. Barb is coming over, that will help a lot. She called this morning and was burning french toast LOL. I like my food well done and told her to bring it with her. Maybe charcoal would help relieve this pain or numb my throat to match my mind. I hope you all had the best Christmas ever.. I still haven't tried that oxycontin.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35734 12-25-2007 09:04 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Jim,
Just take all the meds you need!
I decided yesterday that if I needed them, that's what I would do and have done so!
Okay, so I'm a bit dopey--tho as Ray, my partner says, no dopier than normal!!
Am sitting now sucking on some chocolate!
Hope you and Barb have a good day!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35735 12-25-2007 09:39 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Jim,
Hope the pain meds have 'kicked in' and you and Barb can enjoy the day. Have a very Merry Christmas!!!
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#35736 12-26-2007 01:26 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | The day was very good and I enjoyed what time I had with Barb. LOL We just going to take her daughter and drop her off at her grandmas. Well, after Barb got finished with our short ride, we must have covered 100 Miles or so so she could take us To Dennys to eat. We had a fun day and hope you all did too. Most placces were closed and we ate at Dennys last year and shw wanted to do the same this year.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35737 12-26-2007 01:33 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I wsih someone would tell her how the side affects of cancer can affect a persons mental state. She just doesn't believe me what it can do.. It happens and to all of us who went thru this stuff, know we did it and are sorry. I Need someone that experienced this garbage to send her a letter explaining the mental part of OC.. He address is the same as mine for now. I would appreciate and need any help I can get before it's too late for us to ever be one as before.. Thank you
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35738 12-26-2007 04:55 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Jim
I can send a letter and tell her of my experience. My Dr says with any kind of cancer we also get " Mental cancer " ....That it takes over our minds and emotions as well..some more then others.
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35739 12-26-2007 05:00 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Please do shar. I just can't seem to do it right. And a great Big Thank you .
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35740 12-26-2007 05:54 PM | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Jim, I remember Barb's first and last post. I remember her concern for you in the beginning. And, I seem to remember her frustration towards you posting about your breakup story on line and for some of us rooting for a happy ending. (I think I was one of those guilty parties rooting for the fairybook ending  ) I think she was sending a message to tread lightly. If I was in her shoes, I would not want my first and last name along with my home address published with a plea for letters supporting my (current or ex) significant-other's point of view. Be careful, Jim. Maybe one thing to consider is the emotional toll that cancer has on the caregiver. She's been there and continues to be there for you when you need her the most. I think someone suggested babysteps after all you have tried. That might be a good suggestion. Another idea might be to remove her name and address from your posting. If my husband and I were not in a good place and he did something like that, I'd be hopping mad. Just my humble opinion. Wishing you well.
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Barb read that email . She liked it and got kind of teary like I did. All I can say is thank you to who sent it. You explained it much better than I could. She understood you.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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