#35712 12-19-2007 04:29 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Oh, Jim....you know, my Grandma always said 'something good ALWAYS comes from something bad', and Grandma was ALWAYS right about everything...
I don't KNOW WHEN good will happen, but I KNOW that it WILL...
Know that we love you and care about you; praying for the strength you'll need to fight this...We're right here, friend...
Lois & Buzz
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#35713 12-19-2007 07:09 PM | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | We all here will be with you through every "event" as well. Glad to hear that you will not be going there alone - hang on tight - get ready for the next round of demon (cancer) butt kicking!!!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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#35714 12-20-2007 02:07 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I hate to say this but BarbT was right about my offspring. It seems they all want to be near me for now as they did thru the 1st round. My youngest son wants to bring his 2 young ones and spend the weekend with me. LOL I know they have their own lives, families and problems like we all do. He wants to take me out for dinner and won't listen to me about wasting his money on food for me. Just can't eat enough to verify spending his money on food for me. Funny how time can be found when someone has a problem. Good luck all and have a great day.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35715 12-20-2007 03:39 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Jim - I'm so glad you'll have family with you this weekend. You know, going out to dinner isn't just about the food - it's being with people you care about and enjoying their company. And children, especially, are a great distraction when you have other things troubling your mind. Seeing the world through a child's eyes can make you forget your cares for a little while. Children can be very entertaining, too! (You can always get a "take-home" box and pretend you are going to eat it later.) Have a good weekend and enjoy the special moments!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#35716 12-20-2007 04:57 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hi Jim,
Praying for you my friend. You've been on the prayer tree, as is everyone here who I've come to care about.
As for your kids...
I don't know how to explain that one. I see it with my sister and very much with with Eddie's family. Maybe they can't handle it? Fear sometimes leads to poor choices. Give yourself a gift-don't question anything, just embrace them and the time you will share together. They love you I'm sure, and let them know how much you love and enjoy all of them. As Anne-Marie said, it's not about the food...and your son knows that. He probably just needs a 'normal' environment. Do it his way, let him feel a little in control, it may help him. As for you, just be there and let the fun happen.
Lots of love and prayers to you,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#35717 12-20-2007 07:48 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Jim,
My trick for a meal out is to order soup, then ice-cream or similar--forget the entree!
Or I ask for a 'Junior' meal--never been refused yet!
Had some great meals out with my daughter that way last month, she understood and I didn't feel guilty!
And yes, did do the 'can you box that please?' bit as well!
My son hasn't even come, sometimes, when I've been really down,--in fact I last saw him for half a day, beginning of September!-- but am coming to terms with that now--he's coming for New Year and I shall just enjoy whatever time I get to spend with him. I think he's frightened and also blames me for 'bringing this on myself'--who knows what they think???
Take whatever comes your way to build memories--but also remember that friends are an excellent source of support--both real and cyber--I know I'd be lost without mine!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#35718 12-20-2007 08:32 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I do have a close relationship with my kids VIA telephone mostly and my grandkids love their Pappy as well. Thay would come and stay every weekend if they could. Not that I spoil them or anything.LOL I usually ored the senior or kids meal when we got out ot eat. and I do get the lil ole box for left overs. Brenfrans idea about ordering soup sounds good and I will do that, but gotta have crackers. My weight seems to be dropping pretty fast lately. Seems I have that dunlap dosease.. LOL My belly has done lapped my belt. Thanks for caring all and I will be sure to post when I get home from Columbus next Wed.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35719 12-20-2007 11:26 AM | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Jim,
The grandkids will help take your mind off of things. My dad and I have had many good chuckles over the last few days talking about things my grandson does. He's only 3 and when he's around we forget about the cancer, even if only for a few hours.
Enjoy your weekend!
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
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#35720 12-20-2007 02:44 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | When I had surgery in Aug. 3 of my youngest grandkids wrote me letters. I just found them and read the. Who would ever thing kids ages 6 thru 9 can express their feelings so well it would put tears in your eyes. I hate for them to go thru this again but have no choice. The 9 yr old boy said he was afraid the whole time I was in surgery and cried. letters like that tear me up inside.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35721 12-21-2007 12:54 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have an idea I will be alone for Christmas. I hope not. Barb is going with me to columbus the 26th , but acts as if I never existed right now. The drive to see my kids and grandkids is just too much to do the day before driving to Columbus. Maybe I should find some old HOBO and bring him home to have someone to talk to and be with. LOL I have never been alone for any holiday and never even gave it a thought. I don't know anyone in this town at all, except for barb and her family, so I am at a loss as what to do. How can anyone be so cruel? I had 7 siblings so you know I am used to people. LOL Sorry for using those shoulders again, but I feel lost.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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