I dont care what anyone says...Radiation HURTS LIKE HELL!! It burns, it makes you scared to go...and whats worse is, the nurses and radiologists see it 100 times a day so its almost impossible for them to give sympathy and understanding to ALl patients. That said, it was designed JUST FOR MY CANCER...so SOMEONE has spent a LONG time working out what was best. It worked...so far anyway...I am not going to jinx myself by sayin I am cured...but so far...its gone. The poison from this treatment however is another matter. Two years later despite my being free of the tumour and its friends (the cells)...I still suffer from radiation poisoning and my tongue is still painful and a bit swollen. The Professot who did the op tells me (now) that SOME people suffer for longer than others (the effects of radiation) GREAT. Now my only problem is getting enough painkillers to tackle the pain. Because it is nerve pain, neither me nor my Dr knows what to do. His main worry is that I will become an addict...I DONT CARE about being addicted to these drus as I will deal with one problem at a time. I just wish the FACTS were laid on the table FIRST UP! NOT 2 years later! Grrrr. On the days the Govt decides I cant get enough of the drig I need to enable me to talk and work, I sound drunk. GREAT! Maybe I will get drunk and sound sober? Ho hum...as you can see...its NOT a good day and I have another Drs app today and am preparing myself for him to ask me the same old questions "have you TRIED to reduce your meds?" To which my answer is YES but then I am in pain and sound drunk. He then gives me either one months supply...or 4 days supply depending on that one call to the AMA. Sooo I spend my entrie life organising my life around Dr appointments and pain specialists (who always tell me the same thing....they should just leave a recording!) Tell me what are you all taking to deal with the pain and movement of your tongues with these problems??? Bless you all Love Lyn xxxx


Tongue Cancer SCC Removal of 2/3 of right side tongue, neck disection-34 lymph nodes removed. flap for new tongue made from left wrist in 2007. Now (mid 2011) speech has been back to normal since early 2009, and Im back working as a singer. So far so good!
2016... Still cancer free! Yay.