Cheryl,

Sorry but I laughed a lot when I read your post because I saw a lot of me coming through. Look I didn't like being sick; I didn't like my barbaric Tx and I especially didn't like NOT being in control. All that frustration builds up and it finally has to go somewhere and that usually is the closest person to us which is our Caregivers.

First off I agree with him not wanting the ND until a new PET.

I agree the PEG should stay in until the surgery decision is agreed to by all.

I think he needs to understand that it may take 2 years for his taste to come back.

And finally I think he needs to understand that all this frustration and everything he is dealing with right now is NORMAL and that he needs to calm down or he may make matters worse.

You might want to suggest that he does his own post or tell him he can call me.

David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.