 Platinum Member (300+ posts)
Joined: Sep 2008 Posts: 489 | I keep mine taped down because if it flops around it hurts at the entry site. I remember that one of the instructions that the girl gave me when I had it installed was it did not belong tucked in my panties. LOL She neglected to tell me how to clean it if it got clogged, or not to soak in a bath tub with water covering it and other important things that have come up. But, I NEVER tuck it in my panties. 
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace
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