Hello Tamara,
I am new to this site so have just read these posts. I am like you in that I want to know the things that may happen so I will be better prepared.
I agree with others that Hospice is just wonderful. It must be especially hard dealing with these issues and being there for you children as well as your husband. It is so important that you find time to get proper rest and also time to just get out by yourself. Some may feel that is selfish but in reality you will be a far better caregiver when you take time for yourself. If you don't have a close family support system (I am blessed that way) take advantage of those Hospice volenteers.
My grandson, 11 yr is very close to his PA. I highly recommend two books by Maria Sheriver: What is Heaven? and What's the matter with Grandpa. The 2nd book was more to have him understand the alzheimer's that he has in addtion to the cancer. Please let me know how things are going with your family.
Emma