Tamara,
I am very sorry and saddened that you and Kyle have to go through this.

The hospice people will manage his pain and give him all of the dignity and normalcy that they can. They will train you and the other secondary caregivers on what to do and expect. He may also get some palliative treatment to reduce the tumors (and the pain) as well.

Since everyone responds differently to this disease it is difficult to tell you exactly what to expect.

Cachexia is a common form of cancer death. It is also known as "wasting" disease. Essentially the patient simply loses interest in eating and slowly the organs shut down. The pain center also shut down so the patient is usually not in terrible pain at the end. This is what happened to my father who died from Non-Hodgkins Lymphoma. Oddly, even though it is basically starvation he had no sensation of being hungry.

There are other scenarios as well and liz may wish to share her experience, or you can read her blog(s) at:
http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=63591#Post63591

and also
http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=63463#Post63463





Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)