Mark,

Thank you for replying. I had no idea that we needed to subtract calories lost due to vomiting from the daily intake. As I indicated in my reply to Brian, nutrition has been a real struggle and fight.

Including the calories lost as a result of vomiting, calorie intake was probably 400 per day for a about 4 months following end of treatments.

After having read the other replies, it seems to make sense that the poor nutrition in conjunction with radiation sickness and the use of painkillers have contributed to the 0 energy level, the weight loss and the general feeling of not being well.

As a matter of fact, a few days ago on one of those really bad days, my family members said to me that this was no way of living. I keep saying "Hang in there" as things will get better.

CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations