Hi
My name is Doreen and my husband is Lee. He has stage IV SCC base of tongue and epiglottis. He had a radical neck, total glossectomy, and partial laryngectomy on April 12, and is currently undergoing chemo and rad. He hAD to have surgery(not the treatment of choice) because 10 years ago he had chemo and high dose rad for tonsillar non-hodgkin's lymphoma and could not receive enough rad this time to kill the new cancer. I guess my first question is if there is anyone out there who had total tongue and partial larynx who can swallow anything? We're told this combo of surgery is rare and they don't have many statistics. He currently hs a peg tube and a trach, both of which were not sure are permanent. He is so sick right now and I was hopuing to share some info with him. at 42 years old, he can't fathom never eating again!
Thank you and God Bless us all.