 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Tonya,
When I read the comment from David I could feel the tears welling up in my eyes. I know how scary it must have been to face such a rough surgery after all he had to endure up to that point but I just had a feeling that his trip to Houston would help immensely. I am overjoyed to know that he gets to hold his wife and his daughter in his arms as he travels the road to recovery. What a blessing and how wonderful it is to have a sister like you to persist and keep things moving like you did. Your rewards in life will be great.
Tell David that I am thinking of him often and glad he is doing as good as he is.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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