Nicki,

Be sure and have them check Tom's creatinine as soon as possible tomorrow. Cisplatin has been known to cause kidney damage and if the creatinine is high, fluids will have to be put into him soon. I hope they have been checking this and I certainly hope I am not causing you more worry.

Everything you are feeling is what we all go through. My wife and I have talked a lot about the treatment days and I was a real bear with her at times by just not talking and others even worse for the way I talked and the things I said. We tried to find ways for me to ask her for things or tell her how I was so she wouldn't have to ask. After about six months oftelling her how I was she finally told me that she didn't need to know so many details every day eek . We have many things we look back on and I doubt I really did or said those things but we chuckle now.

Weep all you want whenever you want. This is not an easy road and especially for the caregiver. You are forced to literally lurk in the shadows waiting for the next order or command while all the attention is focused on the patient.

Hang in there, it will get better.

I hope you sleep well, Dear Lady!

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023