Nicki
Except for how much this disease can make you realize how many wonderful friends you have and how many compassionate people there are in our crazy mixed up world everything abut it.. s__ks! By the way...I'm glad you recognize your exhaustion...be good to yourself and get rest when you can it is really important as Tom gets increasingly exhausted and you need to be the one to get things done. I find joining Bob in his afternoon naps (on weekends:)wish it could be every day) does wonders in preserving my patience... especially when dealing with health professionals who are doing thier best (GOd bless them) but sometimes not meeting his needs...Love back to You
Denise