Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Angie,
I am sorry you are having to go through all of this.
The whole financial picture really sucks. The "official" guidelines require you to be totally disabled for at least one year and the medicaid kicks in after two years. The exception is if the doctor stipulates disability will continue for at least one year or the patient is not expected to recover. I have a friend that has esophageal cancer, had most of his stomach removed and chemo with his journey starting in January and by June he had medicaid and disability insurance payments. I am sorry that I don't know if he was diagnosed as terminal and I haven't had the nerve to ask him as I am sure he would offer if he wanted me to know. He was laid off two years ago and before they would approve him, he had to spend all of his life savings and retirement. He paid off everything and paid rent in advance for two years. He used the rest to pay some medical bills and he was reimbursed for all of these as soon as they approved him.
The whole social security process seems so different across the country. You may want to check on disability insurance and disability income if you haven't. It won't be much but it could help.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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