 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Nickie,
I know everyone is different but I think the consensus is that radiation is very tolerable until the latter part of treatment. In my case, the last two weeks and several months afterwards were the pits. A general rule is one month of recovery for each week of radiation. Chemo seems to hit hard and first and not last long. I don't feel the Cisplatin was as bad as my other (5FU). I'm afraid I can't help on the nausea since I never found the right combination even though I tried about everything known to man. I did not mix the emetics with steroids since I usually have a very bad reaction to dexamethasone. I was told the combination would prevent all of my nausea.
This will be my first trip to Vegas and I am looking forward to it.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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