Hello Tina, I can't thank you enough for diligently posting the details of your recovery and treatments. Only someone living through this can describe it with such complexity and understand the difference between skin/nerve sensations and deep tissue scaring, tightness, numbness and pain sensations.

Stephen my husband does his best to share the tightness and pain around his neck and jaw from the radiation and the numbness/tingling from the surgery. His canine which is pressing against his new titanium jaw is twisting like a screw against his front teeth which is very uncomfortable.

Today is three months post radiation treatment and he is struggling to stay positive. He has been a professional painter for over forty years but his limited range of movement and grave discomfort leaves him feel defeated when he paints or attempts to do anything that could leave him feel well.

I asked him if he would be willing to try the same laser treatment you are undergoing and he said he is willing to do anything that could give him some relief and hope again. He doesn't complain but I can tell on a daily note that he is down and finding life very difficult. I am grateful he has remained so open about everything with me, it pushes me to find new ways to help him. Today he will join me at the gym for the first time even though is very tired which is good.

Tina, could you ask your laser specialist if he knows where else in Canada this type of treatment is given? I wouldn't want to show up at a laser facility that mainly or only focuses on esthetics. How did you discover this cutting edge service and how well established is this type of specialized treatment? If you have a phone number that I could call in Calgary then maybe they could guide me to where to go in New Brunswick.

As you can see I am hopeful and will send my husband anywhere if need be to get the treatment he needs, thank you for giving us a way to move forward, Sophie

Last edited by ChristineB; 05-13-2014 02:10 PM. Reason: removed email address

husband 61@diagnosis painter
6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis
17/9/13 Dx(moderately aggressive)
24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube
2/01/14 (30 tx)rads 60gy
N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes)
Clear margin, close 2mm inner cheek
15/05/14 cellulitis
3/12/14 Chest CT Clear
27/02/15 cellulitis
8/6/15 cellulitis
10/6/15 Osteomyelitis