People's insensitivity can be irksome. Then again, I am still convinced that unless a person has been down that road (as a patient or as a caregiver), it is extremely hard for him to truly understand the impact of the diagnosis and treatment. I adopt a very matter-of-fact tone when people ask me about John's condition. I lay out the facts in a calm and even tone. People usually take it quite well.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.