Dear friends,

I am meeting with my MO & RO team at Mass General tomorrow. I'm wondering if any of you that have gone through a recurrence and/or chemo/rads for oropharyngeal cancer have any suggested questions I should ask during the session. My mind is like scrambled eggs right now. I always right things down in "cancer notebook". I know I have to sit down tonight and sort out my questions, but I would greatly appreciate your input.

Thanks so much,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!