 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Goal #1 is to kill the cancer and keep the patient alive. Goal #2 see Goal #1. Nothing matters post Tx if you are not cured. That said you should inquire about the weekly bags of Cis as they seem to (soley by accounts from people on this site) produce less side effects than the old standard of the 3 big bag method or even ask about Carbo instead of Cis which, according to all the MO's I've talked to and I quote, "is just as effective as Cis but without the nasty side effects." This was first said to me 6 years ago and I've heard it throughout the last 6 years of recovery so it just baffels the mind (1) why a study wasn't done that prove or disproved this? and/or (2) why Carbo isn't used first, especially on HPV+ presentations?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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