We just had this conversation at dinner tonight. My husband went back to work in January. He works 3 weeks on and is off/home for 3 weeks, but he's tired and he looks it. The new normal sucks. He wants his life back and so do the kids and I!! But this is what we have and we will make the best of it.
You are not alone. Stay tuned in here. We truly lift each other's spirits!
Kathy

Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14