 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Kellijojo, welcome to OCF. I am so sorry to read your story. Im sorry about the loss of your sister. That must have been a tragedy for your entire family.
On your upcoming check up your doc should be talking to your about any further treatment and tests. A CT or PET scan would be done several weeks after a surgery to make sure the risk for a false positive is less. Imnflamation can bring false positives. It takes weeks for any swelling from a major surgery to subside.
I understand your reasoning behind not getting any further treatments. Im sorry that you feel like that. I guess sometimes its better not to know what goes on in the OR. I have had a neck dissection and it really isnt bad. I have bigger problems from other things than from the neck dissection. Even though you are divorced and not in a relationship, you can still have a long, happy and productive life ahead. At least consider it.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
