 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Get used to no taste or bad taste food Expresso, It will be this way for a long while maybe, but you need the nourishement to keep your body going. You even have to forcefeed when it hurts so bad you want to reach in your mouth and rearrange it. LOL After 3 1/2 years I still get that ungodly burn and bad taste but I am here to at least try. You can do it and get used to it. There are hundreds if not thousands of us that understand what you are feeling. Good luck ..
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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