Does your CCC have a patient advocate? Mine does and in situations like you're describing it's been invaluable. It's somebody you can talk to about frustrating things going on like that. We found that when we talked to that person things got straightened out in a hurry.


Age 41 - Stage 2 SCC tongue Dx 2/06. Cisplatin x3, IMRT x35. Mets to neck node discovered 7/07. RND 40 nodes removed, margins not clear. Cisplatin, Taxotere, 5-FU Fall 07, then IMXT/Erbitux for 7 wks. Inoperable mets to both lungs and pleura Dx Oct'08. 4 cycles Carboplatin, Erbitux, 5-FU so far.