 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jeepster,
Gosh, as many times as I used "Dan" it may be easier to change his name than to correct that many times! So sorry.
I had a "button" installed and the orginal PEG tube taken out. I enjoyed it more because I didn't have the contraption hanging out all the time. It has a valve in it so it doesn't leak and you can put one of two different tubes in when you need to use it. I had a small diameter one I used for meds and a larger one for feedings.
My voice was hardly intelligible off and on and even still everyone makes me repeat things several times. It is so frustrating at times.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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