 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Angie,
I, too, am sorry to have to agree with Rosie. Keep in mind, with hospice care you will receive a highly qualified medical care team that deals with the more intense physical and emotional issues your family is experiencing right now. Treatment can continue provided the doctor states it is palliative care to help in pain management, although I am not sure if Kim is continuing with the treatment right now. The bottom line is that the hospice folks would not have tolerated the hospital adjusting pain meds under any circumstances without approval from the hospice pain management doctor(s).
With all Kim is enduring right now, don't allow them to force her to endure more pain. It just isn't right.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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