 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Sweety,
I am sorry to hear of the new suspect site you mention. Did they radiate that side before and have you had the neck dissection? I am just curious.
Don't worry about your thoughts that you are labeling a "depressing post". It is not that at all, it is merely a person questioning things in light of this disease. I can assure you every single one of us, patient and caregivers alike, have asked this question not once but many, many times through the course of this disease. It is something that will come up from time to time forever, in me at least.
Is your doctor suggesting any type of biopsy of the suspect site? What is the plan? The purpose of the scan is to find suspected cancer and then confirm that through biopsy or surgery. It is not a 100% diagnostic tool.
I am praying for comfort and continued healing for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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