Dear Mariam, Being "thrown off the game plan" at one point or another is par for the course, sorry to say. Are you familiar with the "pain level scale of 1-10 " that patients are asked to pick? Caregivers have a "Frustration and Fear level" scale that we deal with daily. Unfortunately, no one [except OCF folks] ask us what level we are on. We know what you are dealing with, hang in here. Amy in Oz