Dear Petey
there is an old saying about it being "darkest before the dawn" cant remember the exact words,but i always found Robin was at his worst first thing in the morning.The pain always seemed more acute,and he was always very low.On most days after a couple of cups of tea and a freshen up he seemed a lot brighter.I think if you are managing to sleep then you get out of sync with your pain med schedule,and when you wake up the level of medication in your blood stream is very low.The use of a slow release patch helps with this situation as you receive a steady measured dose of pain relief 24/7 and can top up with your regular meds.Get this sorted before you start tx , Petey as i doubt the situation will get better anytime soon.Stay focused my love it will be worth it in the end Easy Rider.

love liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.