Thank you Jo and Happy New Year to you!!

They took the feeding tube out a couple of weeks after treatment. I never really lost the ability to eat as the pain in my mouth and throat never got to the point where I couldn't swallow. I loved the feeding tube. Especially for water intake. I was aspirating so I had to use thickener or drink in small sips with my chin tucked down. What a pain in the butt when they wanted you to drink a small swimming pool everyday. With the tube you just pour away!

The waiting is the hardest. I think we all tend to think of the worst at times. Sadly, the worst, with this disease, can be gruesomely frightening.

One of my hobbies is cooking. It is challenging at best when you have maybe 50% of your taste buds on vacation. I did make a porcini mushroom soup tonight that according to my guests was delicious. Could of fooled me. But it was good to get back into the kitchen again. Thanks for that advice.

Ed


Edward, 64 yrs
7/21/2016 Dx BOT stage 4 w additional tumors neck & left lymph node
8/15/2016 began Tmt EBT w Cesplatin 1x week for 8 wks.
Feeding tube and port.
10/17/2016 finished treatment. CT still shows tissue. Dr. Says 60% chance it is scar tissue.
01/13/2016 PET Scan shows no sign of cancer.