Thank you both for your suggestions, kind words, and for responding quickly.
I'm more at peace and have put in several calls to get a second opinion. Will also call my dentist to get a cleaning & exam in and also get started on those trays.

One thing that gets me, that I failed to mention in my original post. Is that my ENT Doc went over my first CT from 2014 and said I should have been sent to a specialist then and we'd be doing the same thing we are now. I know the past is gone and I would definitely do things differently. So I'm upset and really needed to vent about that.

I'm worried that they don't have a stage. Yet hopeful as my chest CT came back clear. My diagnoses is Mucoepidermoid carcinomas, far from something that begins with E.. sigh

I've started going through this site. So grateful that it's here. Hubby and I are going to get away for a couple days so I can go eat some delicious food. Then we're planning on taking the kids away for several days after Christmas. My Mom is coming down to stay with me starting tomorrow. And I think Hubby will take all of January off.

Any suggestions on things that I should bring to the hospital and have at home?

I picked up a couple boxes of ultra soft tissue and lip balm
Several baskets of different size to hold various things. Also small ones for meds.
Gonna order a humidifier... I have a warm vaporizer, do you think that would be helpful?

Thanks again