Hi Heather,
I just came across your post and hope you are well and all of this is now behind you.
I recently had a mandiblectomy and have a new tongue far too big for my mouth. Can you share any hints on how to get through the radiation and peg tube process? I am also a non drinker , non smoker and am healthy other than oral cancer. Radiation scares me, so does the feeding tube. I've been through 5 surgeries, lived with a nose feeding tube for almost a month but not sure how I'll make it through this next phase of treatment. If you would share your story with me I'm sure it would help.
Thank you,
Susan

2010-surgery for stage 2 squamous cell carcinoma of right lateral tongue. Partial glosectomy with right neck dissection. Clear margins
2012-return of cancer to same area of tongue. Surgery with removal of 2 molars which irritated tongue. Clear margins again.
2013-return of cancer to tongue, floor of mouth and jaw where teeth were
extracted. Rad and chemo suggested - I declined.
2/2015-Mandible fibula, free flap surgery. My leg is truly in my mouth 😆