 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | ak123, it seems like most of the males were going through extended periods of vomiting during and after our treatment when I went through treatment. One member used to describe it as "polishing our teeth from the back side", even. Just hearing a side effect of nausea made me vomit. Zofran and Emend weren't used often and were my lifesavers.
Even with the PEG, I vomitted often. Saturday and yesterday would have been a welcomed relief. I eventually was fed intravenously for months (TPN). Try not to worry too much but stay on top of the hydration. I had an enteral bag and had pedialyte gravity fed while I slept. That gave me back some electrolytes plus it wasn't as bad as far as the nausea. Put as much effort into the hydration as you would anything. That will impact quality of life as much as anything n
You can see the finish line fo pr treatment, stay the course. Best wishes for smooth sailing.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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