[quote=ChristineB]Patients on cisplatin normally will not lose their hair, not sure about with Erbitux (or if its mixed with another type of chemo). Radiation will cause a small spot (about the size of a quarter) of hair loss somewhere on the back of the head. Its not usually noticeable and is only temporary.

I think cisplatin is the most effective type of chemo for OC. Try to opt for weekly smaller doses instead of the 3 'big bag' method of whichever your brother gets. Smaller doses are much easier to tolerate than the larger ones. Many of us with cisplatin only received the first 2 'big bag' doses as we were too sick for the third round of chemo.

As with anything these things come with warnings. No matter which chemo is used make sure to take in extra water to flush it out of the kidneys. This is especially important with cisplatin. Hearing loss can also occur. From what Ive seen discussed, with Erbitux, the more of a rash the patient gets the better the chemo is working. Friend who have had this type tell me it itches like crazy.

Remember this all is only temporary. Rashes heal and hair grows back. If experiencing hearing loss and kidney damage, those are permanent. But also as I stated earlier, less likely with the smaller weekly doses.
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Thank you so much for your opinion. I will see if the doctor can do small does of cisplatin. I read a couple articles re: cisplatin v Erbitux. Did your friend have any reoccurences after doing Erbitux? I will definitely tell him to drink a lot of water! thank you for the advice. I am worried about Cisplatin causing hearing loss and kidney damage. I want whats the best care but I also want him to have a good quality of life.


22 YO Brother Dx 6/17/14 w. SCC R Lateral tongue
CT scan clear LN 6/20/14
HPV-, non-smoker
R tongue, right hemiglossectomy Surgery 6/24/14
(Not reoccurrence but went to NCCC instead
R neck dissection, tracheostomy, radial free flap, R tongue dissection surg 8/11/14
PT1N2B.3 positive lymph nodes out of 13
Extranodal extension present
9-15-14 IMRT (35x) & Cisplatin (2x) begun
10-21-14 peg in. 10-31-14 1 round of carboplatin
11-4-14 IMRT rx comp
3-27-15 Recurrent tumor in lymph node, L neck diss.
10-29-15 brother passed away, 23 yrs old