 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I had the 3 big bags of Cisplatin and a nice to go bag of 5FU that was given after the Cisplatin. I came back in 4 days and they removed the 5FU. I went through every known anti-emetic and finally Emend fixed it. That was a new drug at the time and my father was a pharmacist and asked them to try it.
I got ringing in the ears with the first round of Cisplatin and it never went away. My creatinine went up immediately and took a couple of years to come back down. I had 3 bags of fluids a day for a about 6 months to protect the kidneys.
I had XMRT and the hair came out along the base of the neck on both sides. It came back real curly like the Hasidic Jewish "locks".
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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