I certainly remember the horrible anxiety, inability to sleep or focus, desire to runaway together (maybe it will go away if we don't go to F/U appt, and stomach bottoming out.

Two things helped: I told MO that I had some idea about how brutal this tx was going to be. I could toughen-up if there was a chance for a cure and they were not just experimenting.

The other thing that helped, a treatment plan was put into place. That put me into battle mode and I never felt that helpless again. Even while waiting for F/U PET scans, I felt we had done the best we could.

It also helped that I was busy all the time providing care of one type or another. You become focused to cope with all that needs to be done.


CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016