Contributing Member (25+ posts) Joined: Nov 2013 Posts: 34 | Hi Gloria, I am happy to hear that progression after a short time is minimal. I believe that immunotherapy would take some time and progress wouldnt be seen overnight. I think that John or I or others with distant mets didnt get this way overnight, so it would be logical that reversing it by way of the immune system would take time also. I guess my case presents as unusual. (The MO's description).I had a pet in Jan. and a follow up Ct on Feb. 28th. Some of the lymph nodes were actually smaller. I had cardiac bypass surgery in December, about 2 weeks prior to Jan. petscan. Sooooooo maybe? Last nights tumor board suggests a biopsy of the nodes and see where that goes. The problem with that is that my throat opening is only 4-5cm wide while the camera is 6cm. It now appears that we are going to do a new pet late next week or early the next and see where that goes. The frontline therapy right now is trying to find a Dna match in which to start targeted therapy. I am still looking for a clinical trial in the SW U.S. if you hear of anything. good luck to all club members
discovered a golf ball in my neck St.Paddy's day 2010. Dx stage 4a left tonsil ca may 2010 at 50 non smoker, moderate beer drinker HPV-16 pos. tosillectomy 9 weeks Cisplatin 35 rads nov.2010 PET NED 2011 2x PET NED 2012 2x PET Ned 3/13 Pet NED SEptember 2013 Pet uh-OH.questionable and anxious follow up pet, yup, its back. mets to sub clavivular and mediasteinum nodes biopsy positive scc. trying to figure out next step my imaginary friends think I am crazy.
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