 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Mr. Fish,
It sounds like you have too much idle time in the perpetual but virtual waiting room of life. You need to fill the mind of your wife and yourself with a lot more fun stuff than just waiting for a life altering surgery.
Head up to Weston. Go to The Vineyards and see what dessert Charles Pirtle has cooking up, if he still owns it. Hang out with your wife at the Weston Hotel. Better yet, make it a weekend with the whole family and hit Snow Creek. Go a bit farther towards Rushville and catch the dozens of Bald Eagles that migrate with the Canadian Snow Geese along the Mighty Mo.
Hit the Plaza lights a couple extra times and be sure and go for a carriage ride. It's pretty much everything you want to do to remind you how magnificent life is. Let me know if you need a tour advisor.
Take the time to make the memories. You'll appreciate them immensely and time will go faster.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| 
