Tuesday 09/03 will mark 7 weeks completed in post treatment recovery phase. I am working my way through the persistent tongue ulcer issues. After 5 treatments we are down to 1/4 the original size but the 1/4 brings incredible pain and discomfort at times. It restricts my ability to eat full meals and sometimes I can't eat anything. I have tried magic mouthwash on the ulcer, chewing on one side etc. but still prevented from feeling "normal" with eating. The laser treatments will continue and victory will come at some point in time.

Still battling with fatigue from time to time yet able to put in 6 to 8 hours a day working from home. Tuesday 09/03 I will begin transition to working in the office.

Radiation recall is under control and no longer a major issue. Area is pink but requires moisturizers 2 X per day.

Pain meds are down to 2 10mg oxycodone every 8 hours. This is down from 2 every 3 hours. Next step this week is to drop to 2 every 12.

Still unable to add weight. I have been able to maintain. Total loss is still at 17# from average.



Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.